Loading…
Constructing the Future, Restoring the Past
Friday, June 7 • 2:30pm - 4:15pm
Plenary I, Changing the Narrative: Patient Stories With a New Lens

Sign up or log in to save this to your schedule, view media, leave feedback and see who's attending!

Co-Chaired by Beverley Francis-Gibson, President & CEO of the Sickle Cell Disease Association of America, Inc. (SCDAA)

Co-Chaired by Anthony Guobadia, MD, PA-C, Independent one-on-one Patient Advocate with participating membership with QSCAN CBO and SCTPN CBO in New York state. #DrAnGuoba. #AnguobaSickleCellAnemiaPageMDPAC #@AnGuoba

Patient Speaker: Howard Ffrench, MBA, board member of Sickle Cell Disease Association of America (SCDAA), Miami-Dade County Chapter, Inc.

Patient Speaker: Cassandra Trimnell, Executive Director of Sickle Cell 101 (SC101)

Patient Speaker: Dominique Goodson

Patient Speaker: André Marcel Harris, CHW, Bachelor of Social Work (BSW) student and a Ronald E. McNair Scholar at Fayetteville State University in Fayetteville, North Carolina

Patient Speaker: Quintissa S. Peake

Patient Speaker: Simone Uwan, MD

Patient Speaker: Jennifer Nsenkyire

Moderators
avatar for Beverly Francis-Gibson, MA

Beverly Francis-Gibson, MA

President/CEO, Sickle Cell Disease Association of America, Inc
Beverley Francis-Gibson is President/CEO of the Sickle Cell Disease Association of America, Inc. (SCDAA) and works in conjunction with SCDAA’s 49 Member Organizations and their affiliates to raise awareness of sickle cell disease and sickle cell trait. Additionally, she is involved... Read More →

Speakers
avatar for Jennifer Nsenkyire

Jennifer Nsenkyire

Author, Speaker & Advocate for Sickle Cell and Other Chronic Diseases
A graduate from George Mason University, Jennifer Nsenkyire, was born and raised in Ghana WestAfrica until she migrated to the U. S. in 1995.She lived with Sickle Cell Disease (SCD) for over 37 years and was also diagnosed with MultipleSclerosis (MS) in 2003. She struggled with both... Read More →
avatar for Simone Uwan, MD

Simone Uwan, MD

Dr. Simone Eastman Uwan was born in Guyana South America and migrated to the United States with her family in 1984.  She had a love for science and math and attended “Clara Barton High School for Health Professions” in Brooklyn, NY. She was awarded a scholarship to attend Barnard... Read More →
avatar for Anthony Guobadia, MD, PA-C

Anthony Guobadia, MD, PA-C

Independent one-on-one Patient Advocate
Dr, Anthony Guobadia was born with Sickle cell Disease in Benin City Nigeria. He immigrated to the USA via London At a tender age of 21 years;  with the hope of finding a diagnosis and a cure to his almost daily pains, with frequent episodic increased pain(now call crisis) in dame... Read More →
avatar for Cassandra Trimnell

Cassandra Trimnell

Executive Director, Sickle Cell 101 (SC101)
Cassandra Trimnell is the founder and executive director of Sickle Cell 101 (SC101), a patient advocate and consultant. Trimnell is responsible for developing and creating the educational material and curricula presented by Sickle Cell 101, a Silicon Valley-based non-profit organization... Read More →
avatar for Dominique

Dominique

Dominique Goodson was born and raised in Newark, NJ. After graduating from Rutgers University with a degree in Sociology and Anthropology, Dominique began working as research assistant to professors at different universities. During one of her breaks between research projects, she... Read More →
avatar for André Marcel Harris, CHW

André Marcel Harris, CHW

Social Worker, Student
André Marcel Harris is a Bachelor of Social Work (BSW) student and a Ronald E. McNair Scholar at Fayetteville State University in Fayetteville, North Carolina. Upon completion of his BSW, Mr. Harris aspires to pursue a Master of Social Work/Master of Public Health (MSW/MPH) and a... Read More →
avatar for Quintissa S. Peake

Quintissa S. Peake

Quintissa S. Peake is a Sickle Cell Warrior & Advocate as well as a Guest Lecturer and Speaker. Her passions include Health Education, Community Engagement, and Advocacy. Her passion for health education spills over into other areas, as she is currently a Certified Diabetes Educator... Read More →
avatar for Howard Ffrench, MBA

Howard Ffrench, MBA

Board member, Sickle Cell Disease Association of America (SCDAA), Miami-Dade County Chapter, Inc.
Howard Ffrench, a native of Jamaica was working at IBM World Trade Corporation in Kingston. His younger brother had recently died from complications of sickle cell disease and he wanted to make a “fresh start” and build his own life. He left his parents and siblings and migrated... Read More →


Friday June 7, 2019 2:30pm - 4:15pm EDT
Caribbean IV - V